At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Monday, April 30, 2012

Rhubarb Crisp

From the Recipe Book Everyday Food

"Rhubarb is a vegetable, although it is typically used in jams and desserts; its tart flavor makes it the perfect companion for fresh strawberries, or in this case, strawberry ice cream."

Serves: 12 
Prep Time: 15 minutes
Baking Time: 35 minutes

2 lbs fresh rhubarb
1 1/2 cups sugar
3/4 cup flour
1/2 cup (1 stick) unsalted butter; chilled, cut into pieces
1 cup rolled oats
1/4 teaspoon ground cinnamon
Strawberry ice cream, for serving (optional)

1. Preheat the oven to 400 F.  Slice the rhubarb stalks on the diagonal into uniform 3/4 inch-thick pieces.  Place in a 9x13 inch baking dish; toss with 1 cup of the sugar and 1/4 cup of the flour.

2. In a food processor, pulse the remaining 1/2 cup flour with the butter until the clumps are pea-sized.  Add the remaining 1/2 cup sugar, the rolled oats, and cinnamon; pulse just to combine.  Sprinkle over the rhubarb.

3. Bake until the rhubarb is tender and the topping is golden, 35 minutes.  Serve warm with ice cream, if desired.

Tuesday, April 24, 2012

Bullying and Special Needs

A 10-year old autistic boy was bullied at his school--by his teacher and teacher aids!  Following is a link to the video the boy's dad made regarding the bullying and the "action" the school took.  It's long (nearly 20 minutes) but it's worth it.  

Watch Here

For the first half of the video I was in shock.  By the second half I was in tears.  What are your thoughts?

Thursday, April 19, 2012

March-April iUpdates

We moved (again)!  This time just around the corner, from an apartment to a house.  We're settling in great!  Kai loves  having all his toys out of storage, especially his Buzz Lightyear Four Wheeler.  My sister and her family came for Easter (come again soon, Carrie!), during which time I found out I am pregnant!  John and I are over-the-moon excited for this new little baby.  We're due December 7-ish.  

I'm still trying to talk Kai into potty training.  He knows he'll get a treat if he pees in his toilet and today he asked me if that treat could be bacon.  I am desperate so I said sure.

The other day I bought Kai a gumball.  He said, "Thanks, Mom!  I love gobble-bom!"  

He's also into using the word "English" as an adjective, as in, "That's sooo English." From what I've gleaned about the context, English seems to be the equivalent of "uncool" or "not good."  I have no idea where he comes up with this stuff but it's pretty hilarious to hear.  

Other phrases he uses often are "Well, actually..." and "The truth is...." and "You're the man, Mom."

Pictures coming soon, I promise!