At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Friday, January 27, 2012
Saturday, January 21, 2012
This morning the sun peaked out from behind the clouds for a few minutes and when it did, I dropped what I was doing and announced we were GETTING OUT OF THE HOUSE.
The A.C. Gilbert's Discovery Village is one of our favorite places to go in Salem, but since we're closer to Portland now we decided to visit the Portland Children's Museum instead.
What these pictures don't show are the 50 other kids all around us, stealing shovels, yelling, digging, flinging the whatever-it-is all over the place. It was very loud and chaotic and there was Kai, in the middle of it all, digging and flinging with the rest of them.
Art is often overlooked at places like this. It's so frenzied and loud and busy. I passed this mosaic at least three times before I actually saw it.
Friday, January 20, 2012
Friday, January 6, 2012
And the moms. Bless their little trying-so-hard-to-not-show-embarrassment-while-also-trying-to-find-the-most-politically-correct-way-to-explain-to-their-children-about-physical-differences hearts. I feel sorry for them. They know I can hear their child. They got so flustered and try so hard to shush the commenting. Sometimes I try to catch the mom's eye and smile reassuringly. Sometimes I'll take Kai over to meet the boy or girl. Sometimes I smile to myself and pretend not to have heard.
Yesterday a little boy and his mom were leaving the library as we were entering. The boy, after passing us, said loudly to his mom, "Mom! Did you see that boy?" ...and I took a breath. I was sure about what was coming next. But I was wrong. "He had cars all over his shirt*!" It was a refreshing thing to hear.
*Scroll down. It's the gaudy yellow one that matches his best friend Shad's. It was supposed to only be a pajama shirt but he loves it so much...
Wednesday, January 4, 2012
and dressing up as a shepherd (which only lasted a few seconds)
He got lots of fun gifts but his favorite was from Auntie Carrie--a car keeper and racetrack (between Kai and me in the picture).