At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

Pages

Friday, January 27, 2012

What the...

I came into the living room this morning and this is what I found:

I guess this is the best way to watch Pingu?




Saturday, January 21, 2012

The Portland Children's Museum

This picture is from a while ago.  Kai has a "thing" for hats and sunglasses.  It's cute to find him trying on his dad's hats.  He and I have "hat days" when we both wear our hats.  We're cool like that.

This morning the sun peaked out from behind the clouds for a few minutes and when it did, I dropped what I was doing and announced we were GETTING OUT OF THE HOUSE.


The A.C. Gilbert's Discovery Village is one of our favorite places to go in Salem, but since we're closer to Portland now we decided to visit the Portland Children's Museum instead.


First stop: Water

 The not-so-popular plastic smock-dress.


 All three of them could've played there for HOURS but eventually we moved on.

The Digging Pit was Kai's favorite.  What you're looking at are chunks of...something.  Knowing (and loving) Portland the way I do, it's probably recycled tires or shoe soles or plastic milk jugs or something.  It was soft and surprisingly springy to walk on.  







 What these pictures don't show are the 50 other kids all around us, stealing shovels, yelling, digging, flinging the whatever-it-is all over the place.  It was very loud and chaotic and there was Kai, in the middle of it all, digging and flinging with the rest of them.


The Pet Hospital
 Kai could not have been more disinterested in the pet hospital but his sisters loved it!  Above is Hailey (5 yrs old), caring for a sick kitty.

 Aaaand back to the water.  I tell ya, this kid loooves water.

Art is often overlooked at places like this.  It's so frenzied and loud and busy.  I passed this mosaic at least three times before I actually saw it.
 It's so beautiful and detailed up close.  

Kai's steering, Hailey's lowering the flag and Ashleigh's watching for enemies.




Can't. Leave. The. Water.


"Noooo! No home!"

We did way more cool stuff than I could photograph.  Overall it was fun but it was so busy and Kai was pretty intimidated by all the hustle and bustle.  And who can blame him?  Next time we go, we'll do it on a weekday when fewer people are there.  

And on the way home, all four of my loves fell asleep.

Adventure: Successful.

Friday, January 20, 2012

"I backyooming!  Neee-ow-woooh.  Beep-beep!  Ee-yow-wow!"

 At the pool.

I told him to smile.  This was his reaction:
 Like a boss:


Gingerbread "Hut" with Hailey's kindergarten class:

Mater shops at Michael's!

Christmas Eve is not complete without the live nativity!

 Christmas morning was fun.




Friday, January 6, 2012

Cars all over his shirt

Kids (bless their little tactless hearts) are not quiet or discreet.  When they "whisper" their mothers, "Mom!  Look at that boy.  He's soo little...and fat!"  or, "What's wrong with that boy, Mom?" They don't realize that I can hear them.  And someday Kai will notice, too.  I just hope he's as amused by it as I am.  


And the moms.  Bless their little trying-so-hard-to-not-show-embarrassment-while-also-trying-to-find-the-most-politically-correct-way-to-explain-to-their-children-about-physical-differences hearts.  I feel sorry for them.  They know I can hear their child.  They got so flustered and try so hard to shush the commenting.  Sometimes I try to catch the mom's eye and smile reassuringly.  Sometimes I'll take Kai over to meet the boy or girl.  Sometimes I smile to myself and pretend not to have heard.  


Yesterday a little boy and his mom were leaving the library as we were entering.  The boy, after passing us, said loudly to his mom, "Mom!  Did you see that boy?" ...and I took a breath.  I was sure about what was coming next.  But I was wrong. "He had cars all over his shirt*!"  It was a refreshing thing to hear.  




*Scroll down.  It's the gaudy yellow one that matches his best friend Shad's.  It was supposed to only be a pajama shirt but he loves it so much...


Wednesday, January 4, 2012

Holiday Fun

During the 2011 Holiday season, Mr. Kai stayed busy...


frosting sugar cookies


 Eating candy canes and then napping in front of the TV


and traveling to Seattle (for your well-being this event was not photographed)

and dressing up as a shepherd (which only lasted a few seconds)

And opening his ONE gift on Christmas Eve (pajamas).





Christmas morning!
Santa filled Kai's stocking with all kinds of fun Cars gear as well as candy, candy, candy.

He got lots of fun gifts but his favorite was from Auntie Carrie--a car keeper and racetrack (between Kai and me in the picture).  

We celebrated New Year's in Salem.  Kai stayed awake long enough to ring in the new year (we payed for that the next day when he was cra-anky!).