At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Monday, December 24, 2012
Thursday, June 28, 2012
Tuesday, June 26, 2012
And of course, Target's "ABC trashcan". He can't read, but The Boy recognizes letters when he sees them!
This was in Kai's fortune cookie at dinner the other night. Strange? Ironic? Coincidental? Truly fortuitous? Kai has lots of medical opportunities in his near and distant future. I wonder which one will be "interesting."
P.S. Potty training is going great! He reminds me now when he need to use the bathroom. Our biggest impediment now is (oddly enough) ME! Lifting Kai onto and off of his little Lightning McQueen toilet is taking a toll on my back and tailbone, which are always weak and achy starting at about 20 gestational weeks (this is thanks to a 20-year old tailbone injury).
Thursday, June 21, 2012
FIRST thing's first: Baby is doing great. This week is 16 weeks for me. I'm mostly over being sick. I'm just in that awkward is-she-getting-fat-or-is-she-pregnant stage. We've already had an ultrasound and Baby's long bones are measuring on track with his gestational age with no indication of dwarfism (more later on how I feel about that). We'll have another ultrasound on July 5th to re-measure.
NEXT, all kinds of Kai cuteness from the past few months:
Monday, April 30, 2012
From the Recipe Book Everyday Food
"Rhubarb is a vegetable, although it is typically used in jams and desserts; its tart flavor makes it the perfect companion for fresh strawberries, or in this case, strawberry ice cream."
Prep Time: 15 minutes
Baking Time: 35 minutes
2 lbs fresh rhubarb
1 1/2 cups sugar
3/4 cup flour
1/2 cup (1 stick) unsalted butter; chilled, cut into pieces
1 cup rolled oats
1/4 teaspoon ground cinnamon
Strawberry ice cream, for serving (optional)
1. Preheat the oven to 400 F. Slice the rhubarb stalks on the diagonal into uniform 3/4 inch-thick pieces. Place in a 9x13 inch baking dish; toss with 1 cup of the sugar and 1/4 cup of the flour.
2. In a food processor, pulse the remaining 1/2 cup flour with the butter until the clumps are pea-sized. Add the remaining 1/2 cup sugar, the rolled oats, and cinnamon; pulse just to combine. Sprinkle over the rhubarb.
3. Bake until the rhubarb is tender and the topping is golden, 35 minutes. Serve warm with ice cream, if desired.
Tuesday, April 24, 2012
For the first half of the video I was in shock. By the second half I was in tears. What are your thoughts?
Thursday, April 19, 2012
I'm still trying to talk Kai into potty training. He knows he'll get a treat if he pees in his toilet and today he asked me if that treat could be bacon. I am desperate so I said sure.
The other day I bought Kai a gumball. He said, "Thanks, Mom! I love gobble-bom!"
He's also into using the word "English" as an adjective, as in, "That's sooo English." From what I've gleaned about the context, English seems to be the equivalent of "uncool" or "not good." I have no idea where he comes up with this stuff but it's pretty hilarious to hear.
Other phrases he uses often are "Well, actually..." and "The truth is...." and "You're the man, Mom."
Pictures coming soon, I promise!
Monday, February 27, 2012
Friday, January 27, 2012
Saturday, January 21, 2012
This morning the sun peaked out from behind the clouds for a few minutes and when it did, I dropped what I was doing and announced we were GETTING OUT OF THE HOUSE.
The A.C. Gilbert's Discovery Village is one of our favorite places to go in Salem, but since we're closer to Portland now we decided to visit the Portland Children's Museum instead.
What these pictures don't show are the 50 other kids all around us, stealing shovels, yelling, digging, flinging the whatever-it-is all over the place. It was very loud and chaotic and there was Kai, in the middle of it all, digging and flinging with the rest of them.
Art is often overlooked at places like this. It's so frenzied and loud and busy. I passed this mosaic at least three times before I actually saw it.