At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Monday, September 19, 2011


Kai (wandering in to my room where I'm laying on my bed, watching TV): Mom.  I got questions.  I got questions for you.  I need ask you questions. (He sits down on the floor next to the bed and stares up at me with huge eyes.)

Me (thinking how adorable is this??): You got questions for me?  OK.  I'm ready.

Kai (pause): I get on bed?

bwahahahahaha!  What a funny kid.