At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Wednesday, September 21, 2011

Costume Ideas

I need ideas for Kai's Halloween costume. 

In 2008 he was Nacho Libre
In 2009 he was a gingerbread man
and last year he was a cub scout.

This year I have no ideas.  Pirate?  Prince Charming?  Robot?  

Monday, September 19, 2011


Kai (wandering in to my room where I'm laying on my bed, watching TV): Mom.  I got questions.  I got questions for you.  I need ask you questions. (He sits down on the floor next to the bed and stares up at me with huge eyes.)

Me (thinking how adorable is this??): You got questions for me?  OK.  I'm ready.

Kai (pause): I get on bed?

bwahahahahaha!  What a funny kid.

Monday, September 5, 2011

"What happened, Johnny?"

Two and three-year old children are so funny and quirky.  Kai is no exception.  Right now he's obsessed with calling John and I by our first names.  He even goes out of his way to say things to us so that he can use our names. 

Example.  I overheard this conversation a few minutes ago as John was changing Kai's dirty diaper.

John: C'mon.  Let's change your diaper.
Kai: You change me, John?
John: Yes.
Kai: OK, John.
Normal diaper changing noises occur and then--   
John: Aargh! Yuck.
Kai: What happened, Johnny?
John: Let's just say (muffled...I couldn't tell what he said next, but very clearly I heard--)
Kai: OK, John.

Thursday, September 1, 2011