At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Tuesday, August 16, 2011

Parenting, Illustrated with Rudimentary Renderings

I just discovered this blog and I love it.  Parenting is such a smelly, funny, poignant and messy adventure.  I love the way Amber portrays it.  So, in honor of the Crappy Pictures blog, I present:

Parenting, Illustrated with Rudimentary Renderings:

Post Number One:
If My Children Were Shapes

Let me explain.  Anyone who has breastfed a baby knows that there is a significant amount of time spent awake sitting in the dark in a not-entirely-lucid-but-definitely-not-asleep haze* while a tiny human is attached to you, contentedly dozing and eating at the same time (oh the luxury!).  It is during this time that you a) revisit the day's events, often embellishing them in your favor, b) make life-altering decisions and set stiff personal goals, or c) decide what shapes best represent your children.

Kai, at the time, was undoubtedly a circle.  What a chub!  Hailey, my then-three-year-old was obviously a rectangle.  Athletic and strong, she had (and still has) the makings of a fantastic gymnast.  And then there's Ashleigh, the stick.  All legs and arms, that one.  

In my sleep-deprived delirium that night, I thought I'd struck on something genius.  I remember proudly telling some member of my family (one of my childless sisters) who was not that impressed.  After telling her I just felt dumb.

Fast forward twelve hours, when, once again experiencing midnight nursing dimentia, I re-invent her as a shape: A plump pear.


*Amber has a story for that, too!

Monday, August 15, 2011

What I Love About Two-Year Olds

I took my hanging baskets down to water them.  Kai wandered out onto the porch and picked some flowers...which he promptly tucked behind his ears...

 ...while he did a little repair work on his keyboard with his "too-uh".

And when it was adequately repaired, he played and sang a lovely original composition, which, had he given it a title, I'm pretty sure would've been Ahhhhh-ooohhhh-ahhhh'

Friday, August 12, 2011

Fast asleep... legs in the air.  

The back stairs are right off the laundry room.  I folded these blankets and stacked them at the bottom of the stairs, intending to take them the next time I went upstairs.  In the meantime Kai found them and made a "snest" (nest).  He lay there for a long time, watching the leaves on the trees.

This is our humble little garden.  Three (surviving) corn plants, two tomato plants, two bean plants, two pepper plants and a zucchini plant.

 I pulled weeds, he dug holes.  It was perfect.

My funny little gardener.  What a sweet, delightful boy!  

Animal Tracks

Identify the animal that made these tracks:




A. Bear    B. Kai's wet, diapered bum    C. Deer

Wearing only his diaper, Kai "helped me with the dishes this morning.  When we were done I put him down and he scooted off, leaving the above-pictured trail of water behind him.  :)

Thursday, August 4, 2011

Busy and Fun!

Two words that describe our summer.  Kai can now walk independently, which is a huge accomplishment for him.  I took a few videos with my phone but apparently I film sideways and for some reason there's no sound... (this video is when he was first learning.  He's much more steady now--a few weeks later)

Here are some pictures from our many adventures!

OK, this one's not a summer picture.  Ashleigh (my 7-year old) had a poetry recital at school In May.  Kai got tired of sitting through the Haikus and Acrostics.  He wanted gum and I told him no.....

BBQ at Quince Park--Even though my sunglasses are upside down, he wears them well! :)

Hillbilly teeth.  Thanks, Hon, for bringing those home.

This was taken at Centennial Park here in Redmond--THE place to be this summer.  It's a public fountain park.  Kai LOVES it.  You can't see it well in the picture, but there is a stream of water shooting out of the ground, hitting Kai in the bum.  

Scout Lake.  Non-motorized lake (it's really more of a pond) outside Sisters.  Kai sat there for hours playing in the sand-gravel with his truck.

Going to church, fully equipped with a back pack full of cars.

This boy melts my heart.

Sittin' on the porch, eating suckers.  This was in Orem, Utah.  

Shopping at Costco with bestie Shad.

Shopping at Target with bestie Shad.

Matchy-matchy with bestie Shad, who loves McQueen and Mater as much as Kai does!

"Where's your smile?"  We had so much fun in Utah.  I got to hang with my bestie, Katie, and our boys, Kai and Shad played so well together.  It was heartwarming to watch them interact with each other.  Katie and I have been friends since we were our boys' ages.

Nothing beats a DQ ice cream cone!

We've also gone to the zoo, gotten new boots at Shriners (Kai walked his old boots to death!), planted a garden, and gotten tan, tan, tan!

More adventures are in the works!  Stay tuned.