At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Wednesday, November 9, 2011
Friday, November 4, 2011
Sunday, October 30, 2011
Wednesday, October 19, 2011
Wednesday, September 21, 2011
Monday, September 19, 2011
Monday, September 5, 2011
Example. I overheard this conversation a few minutes ago as John was changing Kai's dirty diaper.
John: C'mon. Let's change your diaper.
Kai: You change me, John?
Kai: OK, John.
Normal diaper changing noises occur and then--
John: Aargh! Yuck.
Kai: What happened, Johnny?
John: Let's just say (muffled...I couldn't tell what he said next, but very clearly I heard--)
Kai: OK, John.
Tuesday, August 16, 2011
Parenting, Illustrated with Rudimentary Renderings:
Post Number One:
If My Children Were Shapes
Let me explain. Anyone who has breastfed a baby knows that there is a significant amount of time spent
Kai, at the time, was undoubtedly a circle. What a chub! Hailey, my then-three-year-old was obviously a rectangle. Athletic and strong, she had (and still has) the makings of a fantastic gymnast. And then there's Ashleigh, the stick. All legs and arms, that one.
In my sleep-deprived delirium that night, I thought I'd struck on something genius. I remember proudly telling some member of my family (one of my childless sisters) who was not that impressed. After telling her I just felt dumb.
Fast forward twelve hours, when, once again experiencing midnight nursing dimentia, I re-invent her as a shape: A plump pear.
*Amber has a story for that, too!
Monday, August 15, 2011
Friday, August 12, 2011
The back stairs are right off the laundry room. I folded these blankets and stacked them at the bottom of the stairs, intending to take them the next time I went upstairs. In the meantime Kai found them and made a "snest" (nest). He lay there for a long time, watching the leaves on the trees.
This is our humble little garden. Three (surviving) corn plants, two tomato plants, two bean plants, two pepper plants and a zucchini plant.
Thursday, August 4, 2011
Here are some pictures from our many adventures!
Wednesday, June 22, 2011
The music was good, the company was good (we went with my friend, Kate, and her three girls--always a treat to spend time with them!!)--what a great evening. Kai and I love summer!