At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Monday, December 20, 2010

"Mom. Watch."

Kai's new favorite thing is jumping.

My apologies for the bright light in the background.  I tried re-shooting this video later that evening with the light off but Kai wouldn't jump anymore.  

Saturday, December 11, 2010

New Project

A memoir of my life as Kai's mom.

Friday, December 10, 2010

New Friends

Yesterday I googled Diastrophic Dysplasia and found, among other things, this blog:

Holding onto Hope

Yay for new friends!

Today Kai had a physical therapy appointment at Shriners.  He is learning how to use a power wheel chair.  It's funny to watch him "drive" because he doesn't understand that you have to push the lever forward and hold it there in order to go forward.  Steering is also pretty foreign.  I can tell that he knows where he wants to go, he just doesn't know how to translate that into "push the lever forward.  Push the lever to the right...weeeeee!"  So we did a lot of circles, a lot of backing up and a lot of horn beeping (there is a button that makes a sound similar to what you hear when large vehicles back up, only a little more obnoxious).

I am so proud of my boy; so proud of the progress he's making, so proud of his patience and tolerance, and so stinking proud of how impossibly cute he is ALL THE TIME.

Monday, December 6, 2010


If you haven't visited Hyperbole and a Half, you are missing out on some seriously funny material.  In honor of Allie Brosh, the blog's author, I bring you a peek into a typical day with Kai: