At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Thursday, October 28, 2010

After much deliberation

We set the bar pretty high with Kai's first Halloween costume.  Last year he was edibly adorable.  This year (drumroll, please) Kai is going to be a Cub Scout!


This all came about to my twelve-year-old friend Hannah.  See, I volunteer each week as a Cub Scout Den Leader and also as a youth leader of the 12-18 year old girls with our church's youth program.  Last night I taught the twelve-year olds how to make bread.  Hannah and I were talking about Halloween and it came up that I still wasn't sure what Kai would be.  She suggested he be a Scout and it just clicked.  I am so excited to create this costume for him--it's going to be perfect (and adorable, of course).  


Thank you, Hannah!



Saturday, October 16, 2010

Feat of Feet!!

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The Boy is a walking ma-CHINE!  We got a walker yesterday at Shriners and he LOVES it! 

Thursday, October 14, 2010

Hope and Peace

A facebook friend of mine brought this blog to my attention.  I spent the last hour reading through it and, having been very touched, would like to share it:

http://patrickandashley.blogspot.com/


Tragic circumstance but inspiring message.

Wednesday, October 13, 2010

Imprisoned Trains and Inviting Staircases

A note about the video: I took this video using my laptop's webcam.  When I move the monitor it makes a really loud and obnoxious creaking sound.  Just FYI.
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Kai got a train set for his birthday.  He calls it his "choo choos" and is obsessed with it.  He wakes up in the middle of the night calling, "Mom!  Mom!  Choo choos?  Mom!  Choo choos?"  His sisters also love it and since they tend to abscond with and monopolize his toys, the beloved train set is not allowed to leave Kai's room.


On his second birthday last week, Kai climbed the whole staircase for the very first time.  He was at the top before I discovered what he was doing (which was probably for the best because I'd have had an aneurysm if I'd seen him mid-staircase).  Now he climbs the stairs every chance he gets.  Thank heaven for baby gates.



Monday, October 4, 2010

Sunday, October 3, 2010

TWO YEARS OLD!

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Today marks the day when, two years ago, our son Kai was born.  He weighed 5 lbs 3 oz, measured 15 inches long and had a head full of dark hair offset by big, blue eyes.  Today he is 22 lbs, 25 inches tall.  He is the funniest little kid I've ever met and we just adore him.  He climbs all over every thing and every one and talks all day long.  He loves to get into my purse and eat my gum, he enjoys scaring me to death by climbing the stairs and window ledges, and he thinks it's hilarious to wander down the driveway to the street.  

Today, however, the only thing on his mind is his new train set, which he calls "choochoos".

To be continued...