At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Thursday, October 28, 2010
This all came about to my twelve-year-old friend Hannah. See, I volunteer each week as a Cub Scout Den Leader and also as a youth leader of the 12-18 year old girls with our church's youth program. Last night I taught the twelve-year olds how to make bread. Hannah and I were talking about Halloween and it came up that I still wasn't sure what Kai would be. She suggested he be a Scout and it just clicked. I am so excited to create this costume for him--it's going to be perfect (and adorable, of course).
Thank you, Hannah!
Saturday, October 16, 2010
Thursday, October 14, 2010
Wednesday, October 13, 2010
On his second birthday last week, Kai climbed the whole staircase for the very first time. He was at the top before I discovered what he was doing (which was probably for the best because I'd have had an aneurysm if I'd seen him mid-staircase). Now he climbs the stairs every chance he gets. Thank heaven for baby gates.
Sunday, October 3, 2010
Today, however, the only thing on his mind is his new train set, which he calls "choochoos".
To be continued...