At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Friday, June 11, 2010

The day we tortured The Boy


Kai has pretty much the best physical therapist who ever walked the planet.  She is FANTASTIC (you know you are, Eileen) and we adore her.  She made arrangements for Kai to try out this power chair.  Kai was thrilled!  He loved it.  See?    .

Eventually we got him into the chair and, after about 20 minutes, he finally realized what that chair could do.  I took lots of video with my phone but I'm at a loss as far as how to transfer it to a format that will allow me to post it here.  I'm trying, though, I promise!  

Kai's driving theory is based on (and much resembles) the flight pattern of a bumblebee, which is to say, he zigs and then zags, lurches forward, then spins around, meanders to the left, then angles to the right.  I think the only direction he didn't go was straight forward.

 

3 comments:

Richins Family said...

He looks so big in the first picture! He's growing up way too fast. Did he ever calm down enough to notice what the chair did?

Destini said...

Tell those big sisters to watch their toes! You'll be surprised how quickly Kai learns to "drive" - that's what little boys are born to do, I think!

Greene Family said...

That's awesome! I love his driving style!