At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Tuesday, June 29, 2010
Friday, June 11, 2010
Eventually we got him into the chair and, after about 20 minutes, he finally realized what that chair could do. I took lots of video with my phone but I'm at a loss as far as how to transfer it to a format that will allow me to post it here. I'm trying, though, I promise!
Me: Kai, let's go night-night.
Me: Well, then, do you want a snack?
Me: Do you want your juicey? (sippy cup)
Kai: Joosh. Joosh.
Me: Here's your juice. Where's your man-mimi? OK. Now are you ready to go night-night?
We also often have this conversation:
Me: Kai, can you say, 'dada'?
Me: Can you say, 'mama'?
Me: Can you say, 'Ashy'? (big sister's name is Ashleigh)
Me: Can you say, 'onomatopoeia'?
Me: Can you say, 'Kai'?
And this one is also classic:
Me: quack, quack, quack
Kai: wa, WA, WA (it gets progressively louder)
Me: arf! arf!
Me: (shrill horse whinnying noise)
Kai: Eeeeeeeeee! (incredibly shrill)
He does say mama, dada, and ash...but we've exploited that so much that he pretty much refuses to do it on demand. Other words he knows: ball, owie, amen, thank you, juice, hi, hello, ta ta (as in 'goodbye'), ta-da, and all done.