At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Wednesday, May 26, 2010

Sometimes a boy just needs a quiet place (in this case, under the computer desk) to talk on the phone. Note the crossed feet. He does this all the time and it's so cute!


Pulling himself to a stand--this is new! He pulls himself to a stand with or without the boots on. This window ledge is perfect! The bottom stair is also popular--especially when sister is at the top calling to him to come up...

He's so little; it's precious to see him standing up. He's barely two feet tall (when they're born, most babies are about 20 inches and, within months measure over two feet in length). This is a huge accomplishment for him. Summer is coming and I'd love for him to be able to wander around outside. Scooting on his bum is great for indoor play, but outside it is completely useless.

10 comments:

Richins Family said...

He is so precious and we miss him so much! I'm so proud of him that he's pullig to stand, way to go Kai!!

cassi said...

HE IS SOOO CUTE!!! I can't believe he's standing!! Way to go Kai!!! :D

Paul and Aubrey Young said...

That is so great! keep it up Kai!!

Nicole said...

Hi, I've been reading your blog for a little while - I'm currently 31 weeks pregnant and my baby girl is thought to have DD (although they will do the genetic tests once she is born). Just wanted to say thanks for helping me to understand a bit more of what may be in store for us. If you have time, you can check out my blog at http://nicolejoy81.blogspot.com

Melissa Swartley said...

Go Kai!!!! This is awesome!!! I love seeing how far he has come! He works so hard to acheive things that come so easily to others and doesn't give up! What great ambition! Love him! Hugs!

Greene Family said...

Kai is super cute! I love his little feet crossed! Simon sits with his crossed all of the time too. Yay for pulling himself to stand! So exciting!

Kim said...

He is just so cute! I just love his little feet! Good for him with his standing! He is doing fabulous!

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Cassiano said...

We are so happy to see Kai standing up. Hugs from Guilherme, Andréia & Cassiano.

Danita said...

haha, carrie made a typo. how embarrassing.