At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Wednesday, May 26, 2010

Sometimes a boy just needs a quiet place (in this case, under the computer desk) to talk on the phone. Note the crossed feet. He does this all the time and it's so cute!

Pulling himself to a stand--this is new! He pulls himself to a stand with or without the boots on. This window ledge is perfect! The bottom stair is also popular--especially when sister is at the top calling to him to come up...

He's so little; it's precious to see him standing up. He's barely two feet tall (when they're born, most babies are about 20 inches and, within months measure over two feet in length). This is a huge accomplishment for him. Summer is coming and I'd love for him to be able to wander around outside. Scooting on his bum is great for indoor play, but outside it is completely useless.

Wednesday, May 19, 2010

Man Mimi

Before Kai, before John, there was me. And Ashleigh. And Hailey. And we were incredibly girly. When John joined up with us it became glaringly apparent just how girly we were. And now, three years later, we've acclimated John and Kai into it nicely.

For example:

For the girls and me, they're panties. For John and Kai, they're man-panties.

Nobody in our home "takes a wiz" or "pees". We all politely go potty.

The girls have their Mimis. Kai has his Man-mimi (or Manmi, as we sometimes abbreviate it). (Note: Mimi=blanket. It began when, at nine months old, Ashleigh dubbed her blanket "Mimi")

In fact, for anything feminine that needs to be masculinized, we usually just add "man" in front of it. Man-tutu. Man-crown. Man-doll (more commonly called 'action figure') Man-jewelry. Man-party. Man-camp.

But man-panties is my favorite. Every time I say it the girls and I can't help but giggle inside.

Tuesday, May 18, 2010

It's a Wonderful Life

All over the house there are special little places that fit only me.
Bottom shelf of the pantry, for example.
I get treats.

My sisters swing with me.

"Man Mimi" and I fit in my new toy box.

I can be reverent for family prayer.