At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Sunday, March 14, 2010

Kai was discharged from the hospital on the 10th. He was in the hospital a total of 10 days! Poor kid. I have pictures on my camera...which is still in the trunk along with his "get well" balloons and sundry blankets, toys, stroller and at least one sour sippy cup...

We're still doing breathing treatments (nebulizer with albuterol) every 4-6 hours, to keep his airways open. He's hardly coughing anymore. He only lost about 1/2 pound, but John and I think he looks thinner in his cheeks.

Thank you so much for all the well-wishes and prayers. We are so grateful to have so many good friends!!

6 comments:

Destini said...

So glad Kai is home and doing much better! The hospital is no fun! Don't forget about that sippy cup, or you'll be in for a super icky suprise! Hugs and prayers for you all!

Jaime said...

So happy to hear that Kai is home and doing better. What a long stay! Better get that sippy cup before too long! Sending hugs!

Stephanie Marazon said...

I am so glad to hear that Kai is doing better. I'll continue to pray for his recovery.

Greene Family said...

I'm so happy to hear that Kai is home and doing better! That was a long hospital stay . . . hope you guys are rested now that you are home. Sending hugs!

Kim said...

I am so happy to hear he is home! Poor baby! Here's to good health for Kai!

Caden and Mommy said...

I am so happy to hear Kai is feeling better. Caden had Bronchiolitis when he was 9 months old, no fun! We too have had our share of hospital stays because of breathing, virus, asthma issues - they are no fun! I'm glad you guys made it through and are back home ... there is no place like home!

The pictures are cute! It is reassuring to watch them turn the corner and start feeling better during their stay!