At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Thursday, March 18, 2010

Roadtrip

Kai and I are heading to Utah next week. We will be driving (from Salem to Provo will take us about 14 hours). We are road warriors, that's for sure. We have family and friends in the area that we'll be visiting.

We're looking forward to meeing Grant Stone and Val Dean Dalling while we're there! If there is anyone else close by that would like to get together, let me know and we'll arrange something. I'll be in the Provo/Orem area Sunday March 21 through the 25th.

Tuesday, March 16, 2010

Sick Days

"Put down the camera and hold me, Mom!"
"Hmm...what should I order for lunch?"




"Look at me all comfy and nestled into the big-kid bed!"


One of the first days we were in the hospital. Kai was pretty sleepy and out-of-it.



Eatin' peaches.










One of the last days in the hospital. He was a much happier kid toward the end of our stay.






Bal-looooon!







Bath: check. Perfect post-bath coif: check.










Sunday, March 14, 2010

Kai was discharged from the hospital on the 10th. He was in the hospital a total of 10 days! Poor kid. I have pictures on my camera...which is still in the trunk along with his "get well" balloons and sundry blankets, toys, stroller and at least one sour sippy cup...

We're still doing breathing treatments (nebulizer with albuterol) every 4-6 hours, to keep his airways open. He's hardly coughing anymore. He only lost about 1/2 pound, but John and I think he looks thinner in his cheeks.

Thank you so much for all the well-wishes and prayers. We are so grateful to have so many good friends!!

Thursday, March 4, 2010

Kai is in the hospital

Kai has bronchiolitis (which is different from bronchitis). He's been sick since Saturday, and in the hospital since Tuesday. Because of the inflammation and mucous build-up AND because his lung capacity is smaller than average, he's having difficulty keeping his oxygen levels up on his own. He's stuck in the hospital until his oxygen levels improve. He'll most likely be in the hospital at least one more day, possibly longer.