At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Thursday, March 18, 2010
We're looking forward to meeing Grant Stone and Val Dean Dalling while we're there! If there is anyone else close by that would like to get together, let me know and we'll arrange something. I'll be in the Provo/Orem area Sunday March 21 through the 25th.
Tuesday, March 16, 2010
"Look at me all comfy and nestled into the big-kid bed!"
Sunday, March 14, 2010
We're still doing breathing treatments (nebulizer with albuterol) every 4-6 hours, to keep his airways open. He's hardly coughing anymore. He only lost about 1/2 pound, but John and I think he looks thinner in his cheeks.
Thank you so much for all the well-wishes and prayers. We are so grateful to have so many good friends!!