At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Thursday, January 7, 2010

Christmas, Between the Couch and the Wall, and Big Belly (not necessarily in that order)

At my parents' house in Idaho; wanting to go down the stairs.

Hangin' out with Dad on Christmas Day. I can't remember why he was naked at the time, but he sure is cute. He loves rubbing his belly.

Presents!








There's a floor vent beneath the wall where our loveseat is positioned so, to keep from blocking it, the loveseat sits about ten inches away from the wall. Apparently that's just enough space for a curious little boy to get into...

...but not out of. He got stuck and "called" for help.








12 comments:

Richins Family said...

He is so incredibly cute!! It was great to see you guys in Idaho, but we miss you a lot now. Come visit! Or, at the very least, send Kai!

Burton Family said...

so stinkin cute. I cant get over how adorable he is. It looks like you parents are finally in the new house, that is so exciting.

Marcie said...

So that totally explains why he kept heading behind OUR couch the other day...... he would look at me as he slowly inched his way around the end table!

Destini said...

So, did you leave him "stuck" to get the camera? What a cutie!

Stephanie Marazon said...

Cute is the word. He looks like he's in jail behind the gate :)

The Bankesters said...

Such a cutie! Love the stuck picture. He is definitely all boy.

Greene Family said...

So adorable!! I love the pictures of Kai "stuck" behind the couch!

Melissa Swartley said...

Awww!!! So cute! It's so funny the way little ones always seem to find all the small places to get stuck in! Sonya loves getting behind our couch too!

Kim said...

Gosh he is just adorable. I want to just squeeze those cute chunky legs! He is getting to be such a big boy! Have a very happy New Year!

DanBlanford said...

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shashank said...

Here is a link to more information about the genetics of Diastrophic Dysplasia that was prepared by our genetic counselor and which has links to some useful resources for those dealing with this condition: http://www.accessdna.com/condition/Diastrophic_Dysplasia/119. There is also a phone number listed if you need to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA

Julie said...

His little facial expressions are so funny! What a cute kid!