At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Monday, December 14, 2009

This is what my handsome little man looks like today. When I stop and think about it, it seems unbelievable that so much time has gone by so quickly. Last night at midnight Kai woke up STARVING so we both had a PB&J snack. There were only three slices of bread left and being the selfish mom that I am, I made Kai's out of the heel so I could have the soft slices. I slapped jam on one side, slathered peanut butter on the other, and folded it in half, crust side out. Kai loved it--he thought it was a pretty cool book. He opened and closed and opened and closed it, book style. Before long he realized that his new book was edible, but only from the inside. I watched him press the whole thing to his face so he could bite the jam chunks off. This, of course, left a bread-sized imprint of peanut butter on his cheeks and forehead but it was so much fun to watch. The little bite marks out of the bread were just precious.

10 comments:

cassi said...

How is it that it's been so long since we've seen you guys? Last time I saw you, it was scorching hot outside, and now it's freezing butt cold! ;) Can't wait to see ya again. We have a lot of catching up to do...

Marcie said...

these are the moments that just make motherhood the best job on the planet

Greene Family said...

Kai is so handsome! It sounds like he really enjoyed his midnight snack - too cute!

Burton Family said...

your such a good mom to hide the heal on the inside of the sandwich. Done like a true mom:)

Kim said...

He is super handsome. Just a little bundle of joy! Those little moments are ones you will remember forever!

lilwedwritinghood said...

He is soooo adoreable! you guys are so blessed.

Melissa Swartley said...

Awww! So cute! Actually, you're not a selfish mom at all! According to my parents (when I was little) the crust and ends of the bread contained the most nutrients! Haha! My grandfather insisted that it helped make my hair grow long and curly! Hehe! What a cutie! He must have been so adorable with all that peanut butter on him!

Hall Family said...

So cute! Parker likes the jam the best too. He is really growing up, isn't he?

Destini said...

What a cutie! I would have taken the bread and given Trace the heel too...shhhhh, don't tell!

Miss Melissa said...

i caught the crust thing. i understand.