At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Monday, November 9, 2009


Today's mail*
*click to enlargeMODs: What have been your experiences with insurance and your LP child?
This letter only just came today and right now I'm feeling definitely taken aback, confused and frankly, unjustly discriminated against. If Kai were terminally ill I could understand being turned down. But he's not! He is as healthy as and has the same life expectancy as an average height child his same age. In fact, I would venture to posit that Kai is, in many ways, more healthy than an average height child his same age.
I'm going to get to the bottom of this.

Monday, November 2, 2009

Halloween 2009

So much fun. Kai was the cutest little gingerbread man.

Big sister Ashleigh was a bride.

John was an army guy, I was a gypsie, and Hailey was a witch. We didn't plan for John to stand in front of the plant with his camo-painted face. He blends in pretty well, doesn't he?

This is Kai's favorite girl, Britanie.