At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Sunday, August 30, 2009

Highlights from our trip to Idaho

We recently got back from a visit to Teton Valley, Idaho, where my parents live. Kai's favorite things about this trip included

Meeting new friends...
Wearing Uncle Christian's most prized possession (Christian is my 16 year-old brother who--I think--got this hat from my other brother, Sterling, who is in the Utah National Guard)

Getting hit over and over and over...and the head by cousin Audrey (my sister Carrie's one year-old). It got to the point that whenever Audrey was close by, Kai would squeeze his eyes shut and brace himself for the inevitable impact of Audrey's fingers in/on some part of Kai's face/eyes/head.

Tolerating Audrey's kleptomania. There was never a toy Kai had solely to himself the entire time we were there.

And of course, sitting in the fruitbowl. Classic.

Monday, August 3, 2009


Today we got internet in our little apartment (yay!). And not a moment too soon, because today is August 3, which, as you all know, means that Kai is ten months old today! Happy un-birthday, son!
Here he is, trying to take a bite out of the table.