At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Thursday, July 16, 2009

There is no modest way to say this.

Today the boy used his three-piece set of Cutco teeth to saw through me while nursing. Thank heavens for the power of connective [albeit delicate] tissue. And coagulation (oh yes, there was blood--TMI, I know).

I have been trying to avoid him all day in the hopes that he will forget all about me (and therefore all about breastfeeding) but that's hard to do when you're the sole care-provider.

1 comment:

KrisBeMi said...

Hello its great to meet you, i know our babies keep us busy! And yes mileena had that surgery already her feet are coming along great not that bad of a surgery besides that big scars she has on the back of her legs and around her ankle but anything to help them out right! I just love your sons freckles and blue eyes he is so precious god bless him! would love to swap stories if you'd like or any questions. Have you meet hania, she reminds me a bit of mileena.