At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Wednesday, June 17, 2009

Chompers and Shopping

Kai is STILL teething. He has one top tooth and one bottom tooth already but I swear I can see at least three more. Poor kid.

Yesterday we took Kai to the Oregon Coast on a little day trip. It was too cold to go down to the beach so we went to the outlet mall instead. He's finally big enough to move up a size (from 0-3 to 3 months). This is momentous; I've hardly bought any clothes for him since before he was born and The Boy is now 8 1/2 months old.

So we're there at the counter and John is holding Kai in his arms and the store clerk says something like, "My, he's a big one!" --something like that. I just chuckled. I think she thought he was only 3 months old; that's the size of clothes we were buying for him. I wanted to tell her that he was really 8 months old but I realize she was just saying something to be friendly and conversational, so I didn't correct her.

I went to a new hair stylist a few weeks ago who said kind of the same thing. I mentioned Kai's dwarfism (he was there next to me in his carseat) and she said that she hadn't realized he had dwarfism; she thought he was just a fat little baby.

As I type, the "fat little baby" is screaming in his bed. I had hoped he'd fall asleep but he can have a will of iron when he's tired and wants to nurse.


Melissa Swartley said...

Oh geez! I hope Kai calmed down for you! When little ones want to nurse, they sure do let you know it! :) I had a few comments about Sonya being a big baby. Sometimes I tell them that she is 17 months old and then go through the whole "she has OI/ dwarfism" speech that ends up being a super long explanation and other times I let them believe that my large "6" month old just said "uh oh, juice fall!" Their jaws pretty much just drop! Kai is so super cute! Wow, he'll be one before you know it! :)

Greene Family said...

Poor Kai with his teething! Simon has three teeth coming in right now too, which means that he has had some restless nights lately.
I chuckle a lot when I get the funny looks and comments when someone asks me Simon's age. Usually, it is sweet older ladies that just want to say hi to him and make conversation.
Kai is such a cutie!

Kim said...

I wish I had saved a dollar for every person who told me and still tells me Preston is a big guy. As a baby he was actually pretty big but now come on-it's obvious he is not! I think they think he is maybe 2 1/2 not 3 1/2. In his stroller he is deceiving because he is a broad kid.
Kai is just precious. I want to see new pics of your cutie in his new clothes!!!! Go Kai. Teething stinks but they look so cute with their little baby teeth!