At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Wednesday, June 17, 2009
Yesterday we took Kai to the Oregon Coast on a little day trip. It was too cold to go down to the beach so we went to the outlet mall instead. He's finally big enough to move up a size (from 0-3 to 3 months). This is momentous; I've hardly bought any clothes for him since before he was born and The Boy is now 8 1/2 months old.
So we're there at the counter and John is holding Kai in his arms and the store clerk says something like, "My, he's a big one!" --something like that. I just chuckled. I think she thought he was only 3 months old; that's the size of clothes we were buying for him. I wanted to tell her that he was really 8 months old but I realize she was just saying something to be friendly and conversational, so I didn't correct her.
I went to a new hair stylist a few weeks ago who said kind of the same thing. I mentioned Kai's dwarfism (he was there next to me in his carseat) and she said that she hadn't realized he had dwarfism; she thought he was just a fat little baby.
As I type, the "fat little baby" is screaming in his bed. I had hoped he'd fall asleep but he can have a will of iron when he's tired and wants to nurse.