At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Wednesday, April 1, 2009
It's amazing how much of a difference a couple of weeks can make. About a month ago I tried feeding Kai cereal and he rejected it. He gagged, he fussed, he wouldn't let the spoon get into his mouth. Today, in contrast, he opened his mouth and made his "cereal face" (formerly known as "nursing face") and hardly spit any out.