At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Wednesday, April 1, 2009


The boy eats cereal! I took these pictures today while Kai gallantly ate almost all of his third meal of rice cereal (his first two were earlier this morning). What a champ.
And yes. His eyes are still blue. *sigh*

It's amazing how much of a difference a couple of weeks can make. About a month ago I tried feeding Kai cereal and he rejected it. He gagged, he fussed, he wouldn't let the spoon get into his mouth. Today, in contrast, he opened his mouth and made his "cereal face" (formerly known as "nursing face") and hardly spit any out.

Go Kai!


Richins Family said...

I'm so glad the cereal went well! I'd hate to think the kid was wasting away without any solids.

Kai gets more and more adorable every time I see him!! And I think it's safe to say that his eyes will be brown before too long.

Hall Family said...

Yay Kai! He is such a cutie!

Greene Family said...

Way to go, Kai!! He is so adorable! I love that first close-up photo of him!

Kim said...

That first picture should be sent to a photo contest. What a beautiful boy you have! Preston used to beg for his cereal too! HE would like pant for it! He loves to eat now so you are going to have a good eater on your hands! Go Kai!