At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Friday, April 10, 2009
Dr. Sussman also commented to me that Kai was looking pretty chubby, almost too chubby! He recommended that I "cut back a little bit." LOL. How do I do that when I'm only breastfeeding the boy? --the next day, April 1st, was when I started feeding him cereal. That has decreased the frequency of breastfeeding, but now he's hooked on cereal and eats a ton of it! I feel like we've jumped from the frying pan into the fire!
In truth, though, I'm not too concerned about Kai's chubbiness. He does have his six-month well-baby check on the 22nd and I'll ask his pediatrician about it then. If she seems concerned then I'll be concerned. But I think she'll tell me not to worry to much about it until he's a little older.
Wednesday, April 1, 2009
It's amazing how much of a difference a couple of weeks can make. About a month ago I tried feeding Kai cereal and he rejected it. He gagged, he fussed, he wouldn't let the spoon get into his mouth. Today, in contrast, he opened his mouth and made his "cereal face" (formerly known as "nursing face") and hardly spit any out.