At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Wednesday, March 11, 2009

It's ugly...but who cares? It works great

Our lovely physical therapist brought this over for Kai. It's homemade-from cardboard (heavy duty)! The contact paper on it isn't the prettiest; I think we'll recover it. I have some better pictures of what it really looks like but I haven't uploaded them yet. Kai loves this chair! It keeps his hands and arms forward and the tray comes up right under his armpits so it's the perfect height. The high back and corner positioning help him use his muscles to stay upright in it. He can reach his toys so much better because they are at just the right height.


His sisters tend to overwhelm him with toys. They think he needs all of his toys on his tray at the same time.


7 comments:

Miss Melissa said...

he doesn't look very happy in these pictures...

Kim said...

He is so precious. I am glad he is happier being upright playing with his toys!

Lexi said...

So. Dang. Cute.

!!!

Hall Family said...

He is so adorable!

Carrie Richins said...

I'm so glad Ashleigh and Hailey make sure he has plenty of toys. What if he were to get bored? I love his cheeks!!

Greene Family said...

He is so adorable and looks happy being upright! How cute that his sisters want to bring him all of his toys to play with too!

Danette said...

Yay for ugly homemade things that work well!