At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Thursday, February 26, 2009

Boy Toy

These are some pictures of Kai with his favorite toy. I'm so glad we found this thing (at Burlington Coat Factory, of all places). Most toys are too small for him to hold with both hands. This one is nice and wide. I made him a "nest" on the couch and put the toy on a pillow where he could see and reach it easily and be played happily for quite a while.














Wednesday, February 18, 2009

FOUR MONTH WELL BABY CHECK-UP

Yesterday I took Kai to his pediatrician for his 4-month well baby check. He is doing very well; he weighs a whopping 14 lbs 1/2 oz (which puts him in the 25th percentile for weight), he is 20 1/2 inches long (he still hasn't made it into the percentiles for height), and his head circumference is 43.2 cm (putting him in the 70th percentile which only means one thing to me: the kid has some big brains housed in that noggin of his!).

Tuesday, February 17, 2009

*deep breath* Here it is:

Note: Being a children's book manuscript, it needs pictures. I purposely wrote it in what I think is an 'illustratable' way. What the words don't say, the pictures will. Just use your imagination for now. :)

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Kai Can
By Chelsea Rivas

Kai is different from most other kids. He is a dwarf. A dwarf is a person who is smaller than most other people. He is very small and his arms and legs are shorter than average. His spine is curved so he can’t stand up straight. He can’t bend his fingers. His thumbs are positioned so that he can’t use them in the typical way others do. His legs are short and bowed so he can’t walk very easily. He also can’t…wait a minute.

What is this book called again? Kai Can’t?

Well, then, what is it called?

Let's find out what Kai can do!



Kai can be naughty and so can I

I’m usually sorry and so is Kai.

Kai can go places and so can I

I use my feet, not wheels like Kai.

Kai can be fast and so can I

I can—oh, no! Slow down, Kai!

Kai can go slowly and so can I

Slower is safer, don’t you think, Kai?

Kai can be friendly and so can I

I see people staring, sometimes, at Kai.

Kai can eat dinner and so can I

I won’t touch spinach and neither will Kai.

Kai can be annoyed and so can I

(I have pesky sisters and so does Kai.)

Kai can do chores and so can I

I’d rather play and so would Kai.

Kai can be frightened and so can I

I can have courage and so can Kai.

Kai can play games and so can I

I can’t hide nearly as easily as Kai.

Kai can paint pictures and so can I

I hold the brush this way, like Kai.

Kai is unique but then, so am I

I like it that way and guess what?

So does Kai!


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Please share: What, to you, is the message of this book? What do you think it will teach children? (I want to know if I've effectively shared what I wanted to share) What other thoughts/suggestions do you have (I'm totally open)? My son Kai is only 4 months old but the character Kai is 5 or 6. There are some things I have to imagine as to how he will be when he is that age. For those of you MODs (Mothers of Dwarfs) whose children are a little older, does this book seem realistic? Could you picture your kids as Kai (loaded with personality and very capable)?

Sunday, February 15, 2009

Kai Can

Kai is my heart; truly. I adore him. And those who meet him can't help but fall in love with him, either. There is just something about him; he exudes a specialness. In French there is the phrase "je ne sais quois" it means "I don't know what" or "something". And that is what Kai has. He just has a certain je ne sais quois about him that defies any other description.

I write. I am a writer. And for seven years I've been sitting on some ideas I've had for children's books. Seven years, everyone! That's a long time! It is high time I do something with my ideas, don't you think?

Kai inspires me. In the four months that he's been here in our home I've wanted to write about him. I wanted to write something beautiful, something meaningful; something that will inspire and uplift and touch people in the same way Kai has touched me.

*Deep breath*

And so, dear readers, I wrote something. It's not at all what I'd envisioned in the first place, but I am overall pleased with it.

It is a children's picture book manuscript entitled Kai Can. Would you like to read it?

Sunday, February 8, 2009

Four Months Old

Kai turned four months old on the 3rd. He has blossomed from a puny little preemie into the chubbiest, most handsome little guy in town! Here he is with his sisters, Ashleigh on his right and Hailey on his left.

Ashleigh is notorious for popping into the picture at the last second.

He's getting so big! He started out life at 5 lbs 3 oz and at our last visit to Shriners he was a whopping 13 lbs 4 oz. Go Kai!


Kai LOVES to smile. Even when he's tired and hungry, if you smile at him he'll smile back--while he's crying!



I am a total sucker for the kissing pictures. And Hailey has great big, fabulous kissing lips.




Handsome boy.