At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.
Now 8 years old, our son Kai is happy, healthy, and enjoying life.
The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.
Thursday, February 26, 2009
Wednesday, February 18, 2009
Tuesday, February 17, 2009
By Chelsea Rivas
Kai is different from most other kids. He is a dwarf. A dwarf is a person who is smaller than most other people. He is very small and his arms and legs are shorter than average. His spine is curved so he can’t stand up straight. He can’t bend his fingers. His thumbs are positioned so that he can’t use them in the typical way others do. His legs are short and bowed so he can’t walk very easily. He also can’t…wait a minute.
What is this book called again? Kai Can’t?
Well, then, what is it called?
Let's find out what Kai can do!
Kai can be naughty and so can I
I’m usually sorry and so is Kai.
Kai can go places and so can I
I use my feet, not wheels like Kai.
Kai can be fast and so can I
I can—oh, no! Slow down, Kai!
Kai can go slowly and so can I
Slower is safer, don’t you think, Kai?
Kai can be friendly and so can I
I see people staring, sometimes, at Kai.
Kai can eat dinner and so can I
I won’t touch spinach and neither will Kai.
Kai can be annoyed and so can I
(I have pesky sisters and so does Kai.)
Kai can do chores and so can I
I’d rather play and so would Kai.
Kai can be frightened and so can I
I can have courage and so can Kai.
Kai can play games and so can I
I can’t hide nearly as easily as Kai.
Kai can paint pictures and so can I
I hold the brush this way, like Kai.
Kai is unique but then, so am I
I like it that way and guess what?
So does Kai!
Please share: What, to you, is the message of this book? What do you think it will teach children? (I want to know if I've effectively shared what I wanted to share) What other thoughts/suggestions do you have (I'm totally open)? My son Kai is only 4 months old but the character Kai is 5 or 6. There are some things I have to imagine as to how he will be when he is that age. For those of you MODs (Mothers of Dwarfs) whose children are a little older, does this book seem realistic? Could you picture your kids as Kai (loaded with personality and very capable)?
Sunday, February 15, 2009
I write. I am a writer. And for seven years I've been sitting on some ideas I've had for children's books. Seven years, everyone! That's a long time! It is high time I do something with my ideas, don't you think?
Kai inspires me. In the four months that he's been here in our home I've wanted to write about him. I wanted to write something beautiful, something meaningful; something that will inspire and uplift and touch people in the same way Kai has touched me.
And so, dear readers, I wrote something. It's not at all what I'd envisioned in the first place, but I am overall pleased with it.
It is a children's picture book manuscript entitled Kai Can. Would you like to read it?
Sunday, February 8, 2009
Ashleigh is notorious for popping into the picture at the last second.