At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Monday, January 26, 2009


I stumbled across this website just now. It's full of pictures of others with various types of dwarfism.

1 comment:

Gretchen4905 said...

Have gone to ? It's Little People of America's website and I'm a member as well as many of my friends. There you can find doctors who specialize in dwarfism and possibly find one in your area if you haven't yet and learn even more about Diastrophic Dwarfism, dressing tips for when he gets older, making the house more accesible, etc.