At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Friday, January 23, 2009

A Visit to Shriners


Nate and Stacey Stone said...

Wow, he's grown so much! I'm amazed at what these little guys are able to go through. Did they tell you how long Kai will have to wear the braces? Doesn't look like he enjoyed himself, but he sure is cute!

Chelsea Rivas said...

His tolerance amazes me. He'll probably wear braces of one kind or another for the next couple of years. He will definitely require surgery, but that won't be until he's walking age, at least.