At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.


Sunday, December 14, 2008




I'm not going to pretend; I wish we hadn't buzzed it. I miss his long, scraggley, baby hair. I hope it grows back fast!

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