At 26 gestational weeks, after an amniocentesis and genetic testing, he was diagnosed with Diastrophic Dysplasia, a rare type of dwarfism.

Now 8 years old, our son Kai is happy, healthy, and enjoying life.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise our little, little boy.

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Sunday, September 28, 2008

Quick Background

John and I were married in the Salt Lake (LDS) Temple in February 2007. We are expecting our first baby, a boy, due November 1.

At 20 gestational weeks, we were informed that our baby had some kind of dwarfism, probably Diastrophic Dysplasia. At about 26 weeks, after an amniocentesis and genetic testing, the diagnosis of Diastrophic Dysplasia was confirmed.

The purpose of this blog is to lend support and encouragement to others in similar situations and to share the tremendous experiences we've had and will continue to have as we raise this little, little boy.